Functional status and quality of life in young adults with cerebral palsy

Автор: Kapruz S., Yilmaz R., Izki A.A., Akkurt M.F., Akkurt B., Akkurt H.E., Albayrak Gezer I., Yilmaz H.

Журнал: Саратовский научно-медицинский журнал @ssmj

Рубрика: Нервные болезни

Статья в выпуске: 1 т.19, 2023 года.

Бесплатный доступ

Objective: To identify the sociodemographic characteristics, pain level, quality of life, functional state, mobility, and depression level in adults with cerebral palsy (CP). Material and methods. Our study included 78 adults with CP (mean age 24.75±7.66 years, 40.5% males) and 79 control subjects (mean age 26.74±6.72 years, 38.5% males). The quality of life, depression, and mobility of all participants were evaluated. In addition, functional status, functional independence and activity level were evaluated in the adult CP group. The depression level was determined by the Beck Depression Inventory (BDI), the mobility level was identified via Rivermead Mobility Index (RMI), and the quality of life was evaluated by the Short Form-36 (SF-36). The functional level of adults with CP was assessed with Gross Motor Function Classification System. Functional independence and activity level were evaluated using the Functional Independence Measure scale (FIM). Pain level was assessed with Visual Analogue Scale (VAS). Results. The patient and control groups were statistically different in terms of their educational status, marital status, duration of marriage, employment status, and monthly income (p function show_abstract() { $('#abstract1').hide(); $('#abstract2').show(); $('#abstract_expand').hide(); }

Еще

Functional status, pain, quality of life, young adults with cerebral palsy, depression

Короткий адрес: https://sciup.org/149143898

IDR: 149143898   |   DOI: 10.15275/ssmj1901057

Список литературы Functional status and quality of life in young adults with cerebral palsy

  • Richards CL, Malouin F. Cerebral palsy: Definition, assessment and rehabilitation. Handbook of Clinical Neurology. 2013; (111): 183-95. DOI:10.1016/B978-0-444-52891-9.00018-X.
  • Colver A, Fairhurst C, Pharoah POD. Cerebral palsy. The Lancet. 2014; 383 (9924): 1240-9. DOI: 10.1016/S0140-6736 (13) 61835-8.
  • Weber P, Bolli P, Heimgartner N, et al. Behavioral and emotional problems in children and adults with cerebral palsy. European Journal of Paediatric Neurology: EJPN: Official Journal of the European Paediatric Neurology Society. 2016; 20 (2): 270-4. DOI: 10.1016/j.ejpn.2015.12.003.
  • Clyde E. Rapp J, MD; Margarita M. Torres, MD. The adult with cerebral palsy. Arch Fam Med. 2000;9. DOI: 10.1001 /arch-fami.9.5.466.
  • Tarsuslu T, Livanelioglu A. Effects of motor limitation on mobility and independence in adults with cerebral palsy. Fizyoter-api Rehabilitasyon. 2008; 19 (3): 117-22. (In Turkish) Tarsuslu T, Livanelioglu A. Serebral paralizili bireylerde motor limitasyonun mobilite ve bagimsizhk duzeyi uzerine etkisi. Fizyoterapi Rehabilitasyon. 2008; 19 (3): 117-22.
  • Ross SM, MacDonald M, Bigouette JP Effects of strength training on mobility in adults with cerebral palsy: A systematic review. Disability and Health Journal. 2016; 9 (3): 375-84. DOI: 10.1016/j.dhjo.2016.04.005.
  • Ela Tarakci FT. The results of quality oflife in adolescent cerebral palsy. Cocuk Saghgi ve Hastahklan Dergisi 2011; (54): 142-7. (In Turkish) Ela Tarakci FT. Ergen serebral paralizili ol-gularda yasam kalitesi sonuclari. Cocuk Saghgi ve Hastahklan Dergisi. 2011; (54): 142-7.
  • Ravens-Sieberer U, Erhart M, Wille N, et al. Generic health-related quality-of-life assessment in children and adolescents. Pharmacoeconomics. 2006; 24 (12): 1199-220. DOI: 10.2 165/00019053-200624120-00005.
  • Beck AT, Ward CH, Mendelson M, et al. An inventory for measuring depression. Archives of General Psychiatry. 1961; 4 (6): 561-71. DOI: 10.1001/archpsyc.1961.01710120031004.
  • Hisli N. Beck depresyon envanterinin universite ogren-cileri icin gecerliligi, guvenilirligi. (A reliability and validity study of Beck Depression Inventory in a university student sample). J Psychol. 1989; (7): 3-13.
  • Palisano RJ, Rosenbaum P, Bartlett D, et al. Content validity of the expanded and revised Gross Motor Function Classification System. Developmental Medicine & Child Neurology. 2008; 50 (10): 744-50. DOI: 10.1111/J.1469-8749.2008.03089.X.
  • McCormickA, Brien M, Plourde J, et al. Stability of the Gross Motor Function Classification System in adults with cerebral palsy. Developmental Medicine & Child Neurology. 2007; 49 (4): 265-9. DOI: 10.1111/J.1469-8749.2007.00265.X.
  • Ware JE, Kosinski M, Keller S. SF-36 physical and mental health summary scales: A user's manual. Health Assessment Lab.; 1994.
  • Kocyigit H, Aydemir O, Fisek G, et al. Reliability and validity of the Turkish version of Short Form 36 (SF-36): A study with a group of patients with rheumatic disease. Medicine and Treatment. 1999; (12): 102.6. (In Turkish) Kocyigit H, Aydemir O, Fisek G, et al. Kisa Form 36 (KF-36) 'nm Turkce versiyonunun guvenilirligi ve gecerliligi: Romatizmal hastahgi olan bir grup has-ta ile cahsma. ilac ve Tedavi. 1999; (12): 102.6.
  • Keitll R, Granger C, Hamilton B. The functional independence measure: A new tool for rehabilitation. Adv Clin Rehabil. 1987; (1): 6-18.
  • Kucukdeveci AA, Yavuzer G, Elhan AH, et al. Adaptation of the functional independence measure for use in Turkey. Clinical Rehabilitation. 2001; 15 (3): 311-9. DOI: 10.1191 /026921501676877265.
  • Collen FM, Wade DT, Robb G, et al. The Rivermead mobility index: A further development of the Rivermead Motor Assessment. International Disability Studies. 1991; 13 (2): 50-4. DOI: 10.3109/03790799109166684.
  • Akin B, Emiroglu ON. The validity and reliability of Turkish version of Rivermead mobility index (RMI) in the elderly. Turkish Journal of Geriatrics. 2007; 10 (3): 124-30. (In Turkish) Akin B, Emiroglu ON. Rivermead mobilite indeksi (RMi) Turkce for-munun yashlarda gecerlilik ve guvenilirligi. Turk Geriatri Dergisi. 2007; 10(3): 124-30.
  • Aydin A, Araz A, Asan A. Visual Analog Scale and Affect Grid: an Application to Turkish Culture. Turkish Psychology Articles. 2011 ;14 (27):1-13. (In Turkish) Gorsel Analog Olcegi ve Duygu Kafesi: Kulturumuze Uyarlama Calismasi. Turk Psikoloji Yazilari. 2011; 14(27): 1-13.
  • Benner JL, Hilberink SR, Veenis T, et al. Long-term deterioration of perceived health and functioning in adults with cerebral palsy. Archives of Physical Medicine and Rehabilitation. 2017; 98 (11): 2196-205. DOI: 10.1016/j.apmr.2017.03.013.
  • Opheim A, Jahnsen R, Olsson E, et al. Physical and mental components of health-related quality of life and mus-culoskeletal pain sites over seven years in adults with spastic cerebral palsy. J Rehabil Med. 2011; 43 (5): 382-7. DOI: 10.2340/16501977-0787.
  • Opheim A, Jahnsen R, Olsson E, et al. Balance in relation to walking deterioration in adults with spastic bilateral cerebral palsy. Physical Therapy. 2012; 92 (2): 279-288. DOI: 10.2522/ptj.20100432.
  • Jahnsen R, Aamodt G, Rosenbaum P. Gross Motor Function Classification System used in adults with cerebral palsy: Agreement of self-reported versus professional rating. Developmental Medicine & Child Neurology. 2006; 48 (9): 734-8. DOI: 10.1017/S0012162206001575.
  • van Gorp M, Dallmeijer AJ, van Wely L, et al. Pain, fatigue, depressive symptoms and sleep disturbance in young adults with cerebral palsy. Disability and Rehabilitation. 2021; 43 (15): 2164-71. DOI: 10.1080/09638288.2019.1694998.
  • van der Slot WM, Benner JL, Brunton L, et al. Pain in adults with cerebral palsy: A systematic review and meta-anal-ysis of individual participant data. Annals of Physical and Rehabilitation Medicine. 2021; 64 (3): 101359. DOI: 10.1016/j.rehab. 2019.12.011.
  • Horwood L, Li P, Мок E, et al. Health-related quality of life in Canadian children with cerebral palsy: What role does sleep play? Sleep Medicine. 2019; 54: 213-22. DOI: 10.1016/j. sleep.2018.10.022.
  • Jahnsen R, Villien L, Stanghelle JK, et al. Fatigue in adults with cerebral palsy in Norway compared with the general population. Developmental Medicine and Child Neurology. 2003; 45 (5): 296-303. DOI: 10.1017/s0012162203000562.
  • Jahnsen R. Being adult with a 'childhood disease' — A survey on adults with cerebral palsy in Norway (Thesis). Faculty of Medicine, University of Oslo. 2004.
  • Mckinnon CT, Meehan EM, Harvey AR, et al. Prevalence and characteristics of pain in children and young adults with cerebral palsy: A systematic review. Developmental Medicine & Child Neurology. 2019; 61 (3): 305-14. DOI: 10.1111/dmcn.14111.
  • van Gorp M, Hilberink SR, Noten S, et al. Epidemiology of cerebral palsy in adulthood: A systematic review and me-ta-analysis of the most frequently studied outcomes. Archives of Physical Medicine and Rehabilitation. 2020; 101 (6): 1041-52. DOI: 10.1016/j.apmr.2020.01.009.
  • Sienko SE. An exploratory study investigating the multidimensional factors impacting the health and well-being of young adults with cerebral palsy. Disability and Rehabilitation. 2018; 40 (6): 660-6. DOI: 10.1080/09638288.2016.1274340.
  • Eres R, Dutia I, Mulraney M, et al. Understanding the prevalence rates of psychiatric disorders in people with cerebral palsy: A systematic review protocol. medRxiv. 2021. DOI:10.110 1/2021.03.23.21254205.
Еще
Статья научная